Her breathing was gurgly and loud but she enjoyed Louis visit. I took him home after a short time as Margaret was too bruised to take for a walk in her wheelchair. I returned after an hour with a sandwich and a Gin and Tonic for Margaret's lunch. She again rejected the lunch provided and ate half a sandwich from home. She drank some of the G and T but really wasn't impressed with it. We stayed until 2.00 pm as Margaret's GP, A, was supposed to visit. He hadn't arrived by the time we left and we needed to feed Louis and get out own lunches. We later learnt that he arrived 10 minutes later but Margaret didn't remember him coming. We solved the chair problem by switching off its power supply after she had been installed so even if she found the controller it would not operate.
These pictures show Margaret in her chair and sleeping. This condition was not to last for long.
On Saturday we arrived to find Margaret on the floor - well actually on the mattress. Apparently she had fallen out of her chair by wiggling as far forward as she could to the end of the foot rest. The chair then tipped forward and she landed on the mattress and went to sleep. She had had an hours sleep on the floor as the carer's had just covered her up and left her to sleep. It takes at least two people to get her up and as she was comfortable and in no danger leaving her there was the sensible thing to do.
The carer's got her up when we arrived and placed her back in her chair. She was very confused and thought that she was in her own home but not in Queensland, possibly SA or even the UK. She kept trying to get up as she was "going out". She was in a a really nasty mood and poor Helen came in for a lot of flack for not visiting enough which is unfair as we moved over 2000 km from her. It was not a pleasant visit and Margaret's breathing was still laboured. We left after giving her a sandwich and some white wine. She only ate half a sandwich but actually liked the wine.
On nice thing was that our friend, B, dropped in for a visit and this did brighten Margaret up for a while but she slipped back into her bad mood after B left.
On Sunday we arrived and Margaret was in her chair and very upset. She had been agitated all morning and had thrown her breakfast on the floor. Fruit and Yoghurt make a nice mess on the carpet which had to steam cleaned later. We learnt that after we left the day before she had asked the carers to take her to bus which would take he to Sunbury on Thames where she used to live 52 years ago.
She was upset all morning and we left both very upset by her behaviour. We know that she is very ill and the toxins from her kidney failure and the pain killing drugs are making her dementia and confusion worse but the constant aggression towards us both is difficult to take. When we tried to leave she tried to get out of the chair and come with us.
Early Monday morning Margaret's GP, A, phoned to see how Margaret had got though the weekend and said that he would visit her at lunch time.
The visit was worse that before and by 12.00 noon i had had enough and went out to the car park to wait for A leaving Helen alone with Margaret. I believe that Margaret was really nasty to her and told her to leave. A arrived at 12.45 pm and spoke to Margaret who responded with a long litany of complaints about us and the carers. Most of it was incomprehensible. A has now prescribed an anti-psychotic drug to ease her confusion and also sedate her. Her also said that for our own sake we shouldn't visit Margaret for two days to allow her to settle down. We will comply.
This is another broken promise as I had promised to visit Margaret every day. I hope that her confused unhappy mind doesn't remember this.
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